Tag Archives: Angelman Syndrome

ATOS – How often do you behave in a way that upsets other people?

I’m filling in G’s “limited Capability for Work” questionnaire. This is for the transfer from Incapacity Benefit to Employment and Support Allowance (ESA) I’m swearing…. a lot! The air around me has been blue with expletives for days now and … Continue reading

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“Breaking Point”

10 years ago I was part of a group of parents campaigning locally to save the local children’s respite centres from closure. These were establishments that offered families of disabled children an overnight break from caring for their child. One … Continue reading

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Let him eat cake!

When we set up G’s supported living arrangements three years ago we had a vision of how it would be. We wanted him to have a personal budget and we wanted to be fully involved in his life and enable … Continue reading

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Doctor knows best!

Over the last few months I’ve had a couple of friends tell me about the horrible experiences they’ve had when seeking medical help for their disabled kids.  It’s got me thinking about some of our experiences in the past with … Continue reading

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A Square Peg

Ten years ago I started writing a book about G. I called it “A Square Peg” It’s still sitting in a file on my computer, I never did get it published. It got rejected from one publisher and I lost … Continue reading

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