Tag Archives: disability

Family Champions & Cake

Since January this year we (OxFSN) have been running a course for family carers of children and adults with learning disabilities. The course was called ‘Creating Family Champions’ and the aim was to work with families to help them better … Continue reading

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Listening to Families

I’ve just got back from a meeting with families in Wales. It’s very late – and I’m meant to be unwinding, going to bed, getting ready for a break to Cornwall… but I want to get this down now. The … Continue reading

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Openness, Honesty, Respect and Valuing People: What “good” can look like

This last week has been one of stark contrasts for me. The report into Connor’s death and subsequent commentary on it has seen my twitter feed alight with anger and condemnation and rightly so. #justiceforLB has been buzzing. The power … Continue reading

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A preventable Death #justiceforLB

There have been lots of brilliant blogs and reactions about the report into the death of Connor Sparrowhawk (LB as he’s known through his mums blog) But, I thought I’d add to the mix… I’ve been so incensed and angry … Continue reading

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ATOS – How often do you behave in a way that upsets other people?

I’m filling in G’s “limited Capability for Work” questionnaire. This is for the transfer from Incapacity Benefit to Employment and Support Allowance (ESA) I’m swearing…. a lot! The air around me has been blue with expletives for days now and … Continue reading

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“she’s at it again” ranty, rant, alert!

I’ve spent the last few weeks trying to focus on our new preparing for adulthood guide (Transition) I’ve delayed it for a while now because of all the changes but the last one (Transition Matters) was written in 2009, is … Continue reading

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“A level playing field”

I spent the day in Cambridge yesterday with Linda and Charlotte (from Preparing for Adulthood), a group of professionals from around the Eastern region and a few parents. The event was about involving families in commissioning. I love events like … Continue reading

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Inspiring, Informing and Involving Families

On Saturday we held our fourth Family Information Fair for Oxfordshire Family Support Network (OxFSN –  www.oxfsn.org.uk ). We are a very small organisation and only became a registered charity last year (not great timing given the current financial climate!) We … Continue reading

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Let him eat cake!

When we set up G’s supported living arrangements three years ago we had a vision of how it would be. We wanted him to have a personal budget and we wanted to be fully involved in his life and enable … Continue reading

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A work in progress

It’s been three years since G moved into his own home and just when I was starting to relax , feeling more than a little smug and thought everything was great we’ve hit a few problems. Nothing major, but enough … Continue reading

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