Tag Archives: learning disabilities

Choice and Control versus Duty of Care

I’ve had two family carers contact me in the last month about difficulties they are having with their relatives support. Both young people have been in supported living for just over a year (with different support providers). Both have put … Continue reading

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Reasonable Adjustments

In my last post…many moons ago, I wrote about G’s cyst. G’s cyst became massive. A lump the size of a golf ball on his forehead and growing all the time. Despite the GP’s insistence that it would probably shrink … Continue reading

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Family Champions & Cake

Since January this year we (OxFSN) have been running a course for family carers of children and adults with learning disabilities. The course was called ‘Creating Family Champions’ and the aim was to work with families to help them better … Continue reading

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“Sometimes you get angels” – what a good support worker looks like

Many years ago a friend of mine said “Sometimes you get angels”. She was referring to those people who come into your life and support your kids. People who just get it – people who go the extra mile. Sara … Continue reading

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Listening to Families

I’ve just got back from a meeting with families in Wales. It’s very late – and I’m meant to be unwinding, going to bed, getting ready for a break to Cornwall… but I want to get this down now. The … Continue reading

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Openness, Honesty, Respect and Valuing People: What “good” can look like

This last week has been one of stark contrasts for me. The report into Connor’s death and subsequent commentary on it has seen my twitter feed alight with anger and condemnation and rightly so. #justiceforLB has been buzzing. The power … Continue reading

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A preventable Death #justiceforLB

There have been lots of brilliant blogs and reactions about the report into the death of Connor Sparrowhawk (LB as he’s known through his mums blog) But, I thought I’d add to the mix… I’ve been so incensed and angry … Continue reading

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Everybody needs good neighbours (part 2)

Recent developments in the nasty neighbour story have left me seething with anger! After my last post about this  (https://abitmissing.wordpress.com/2013/07/31/everybody-needs-good-neighbours/) we (myself and the other parents) decided to let the  organisation who provide the support to G and his housemates deal … Continue reading

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ATOS – How often do you behave in a way that upsets other people?

I’m filling in G’s “limited Capability for Work” questionnaire. This is for the transfer from Incapacity Benefit to Employment and Support Allowance (ESA) I’m swearing…. a lot! The air around me has been blue with expletives for days now and … Continue reading

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“she’s at it again” ranty, rant, alert!

I’ve spent the last few weeks trying to focus on our new preparing for adulthood guide (Transition) I’ve delayed it for a while now because of all the changes but the last one (Transition Matters) was written in 2009, is … Continue reading

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