Tag Archives: listening to families

Reasonable Adjustments

In my last post…many moons ago, I wrote about G’s cyst. G’s cyst became massive. A lump the size of a golf ball on his forehead and growing all the time. Despite the GP’s insistence that it would probably shrink … Continue reading

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Family Champions & Cake

Since January this year we (OxFSN) have been running a course for family carers of children and adults with learning disabilities. The course was called ‘Creating Family Champions’ and the aim was to work with families to help them better … Continue reading

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“Sometimes you get angels” – what a good support worker looks like

Many years ago a friend of mine said “Sometimes you get angels”. She was referring to those people who come into your life and support your kids. People who just get it – people who go the extra mile. Sara … Continue reading

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Listening to Families

I’ve just got back from a meeting with families in Wales. It’s very late – and I’m meant to be unwinding, going to bed, getting ready for a break to Cornwall… but I want to get this down now. The … Continue reading

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Openness, Honesty, Respect and Valuing People: What “good” can look like

This last week has been one of stark contrasts for me. The report into Connor’s death and subsequent commentary on it has seen my twitter feed alight with anger and condemnation and rightly so. #justiceforLB has been buzzing. The power … Continue reading

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A preventable Death #justiceforLB

There have been lots of brilliant blogs and reactions about the report into the death of Connor Sparrowhawk (LB as he’s known through his mums blog) But, I thought I’d add to the mix… I’ve been so incensed and angry … Continue reading

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Information, information, information!

The Government green paper, Support and Aspiration, proposed that local authorities and other services set out a local offer of all services available to support children who are disabled or who have SEN and their families. It stated that… “This … Continue reading

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“Breaking Point”

10 years ago I was part of a group of parents campaigning locally to save the local children’s respite centres from closure. These were establishments that offered families of disabled children an overnight break from caring for their child. One … Continue reading

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“A level playing field”

I spent the day in Cambridge yesterday with Linda and Charlotte (from Preparing for Adulthood), a group of professionals from around the Eastern region and a few parents. The event was about involving families in commissioning. I love events like … Continue reading

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Inspiring, Informing and Involving Families

On Saturday we held our fourth Family Information Fair for Oxfordshire Family Support Network (OxFSN –  www.oxfsn.org.uk ). We are a very small organisation and only became a registered charity last year (not great timing given the current financial climate!) We … Continue reading

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